Updates



So-my sincere apologies for not updating sooner. Willa continues to be happy, curious, funny, and energetic. Harper is a little imp-much more opinionated and strong willed than her cooperative and ready to please big sis. We had a small set back this last month. ON her routine CAT scan-a blood clot was found in the large vein of Willa's neck. This is a not uncommon complication for little kids with catheters in their veins (mediport) but to prevent the much more serious complication of the blood clot migrating to her lungs-she will need to be on a blood thinner for the next few months. So-another treatment (twice daily injections into a small catheter in her leg) that Willa is just tolerating in such an inspiring way-and she works through it by role playing with her baby doll Oscar (her "brother" which profoundly confused the folks at Children's for quite some time). Meanwhile-Willa has about 10 more weeks of chemotherapy which will be folowed by intense surveillance for some time. We are very hopeful-she looks amazing and very grateful for all of those who have made this incredible journey with us.