These days

Willa has remained in great spirits and has continued to find enjoyment in her life even as she experiences increasing fatigue and weakness. Our days are filled with videos, stories, taking care of the babies (Oscar, Frank and the gang), Polly Pockets (thanks to a very generous loan from our special neighbor friend Ava), games, and art. She brightens up for a little time with Emily (our nanny) each week but her circle has grown smaller as she seems to prefer to play quietly up on the third floor. The last few days have been harder for her. More sad than happy as she seems to be struggling just a little bit more. We stay close and offer her all of our love and comfort and the thoughts, love, and support from all the family and friends who have been here for us all through the year.